St Louis, MONCT04980638Now EnrollingIRB Ready

X-linked Hypohidrotic Ectodermal Dysplasia Clinical Trial in St Louis, MO

Access cutting-edge x-linked hypohidrotic ectodermal dysplasia treatment through this clinical trial at a research site in St Louis. Study-provided care at no cost to qualified participants.

Sponsored by EspeRare Foundation

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Expert Care in St Louis

Access x-linked hypohidrotic ectodermal dysplasia specialists at no cost

IRB Approved

This study follows strict safety protocols and ethical guidelines

No-Cost Care

All study-related x-linked hypohidrotic ectodermal dysplasia treatment provided free

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Check if you qualify for this x-linked hypohidrotic ectodermal dysplasia clinical trial in St Louis, MO

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Your information is protected and will only be shared with the research team.

Why Participate?

  • No-Cost Study Care

  • Local to St Louis

    Convenient for MO residents

  • Cutting-Edge Treatment

    Access to innovative therapies

  • Expert Medical Care

    Close monitoring by specialists

  • Possible Compensation*

    For time and travel

*Compensation varies by study. Confirm details with coordinator.

Simple Process

  1. 1Submit this form
  2. 2Phone screening
  3. 3Visit St Louis site if eligible
  4. 4Begin participation

About This X-linked Hypohidrotic Ectodermal Dysplasia Study in St Louis

This is an open-label, prospective, genotype-match controlled for primary estimand, non randomized, multicenter, international Phase 2 clinical trial designed to investigate the efficacy and safety of ER004 administered intraamniotically as a treatment for unborn XLHED male subjects.

Sponsor: EspeRare Foundation

Who Can Participate

Inclusion Criteria

For mother: adult mother with confirmed pregnancy no later than week 23+6 and genetically confirmed as carrier of an EDA mutation
For fetal subject : male fetal subject with confirmed diagnosis of XLHED
For untreated relative: untreated male relative subject aged between 6 months and 75 years with the same EDA mutation as the treated subject

Exclusion Criteria

For mother: any evidence of active maternal infection associated with a risk of preterm birth and/or congenital anomalies of prenatal and postnatal risk to the child. Documented maternal HIV infection. Any pre-existing maternal medical condition that increases the risk of preterm birth or increases the risk of a serious untoward event occurring to the mother during pregnancy. Any pregnancy disorder associated with an increased risk of preterm birth, and/or maternal, fetal or neonatal morbidity/mortality.
For fetal subject : second major anatomic anomaly (not related to the underlying XLHED) that c

Not sure if you qualify? Submit your interest and a study coordinator will help determine your eligibility.

Frequently Asked Questions

Q:Is this study available in St Louis?

Yes, this clinical trial (NCT04980638) has an active research site in St Louis, MO that is currently enrolling participants.

Q:Is it safe to participate?

Clinical trials follow strict safety guidelines and ethical standards. This study has been reviewed and approved, and participants are closely monitored by medical professionals. You can withdraw at any time.

Q:Will I be compensated?

Many clinical trials offer compensation for your time and travel expenses. Specific compensation details will be discussed during the screening process. All study-related medical care is provided at no cost.

Q:Can I leave the trial if I change my mind?

Absolutely. Participation is completely voluntary. You have the right to withdraw from the study at any time, for any reason, without penalty.

Still have questions? Our study coordinators are here to help.

X-linked Hypohidrotic Ectodermal Dysplasia Treatment Options in St Louis, MO

If you're searching for x-linked hypohidrotic ectodermal dysplasia treatment options in St Louis, MO, this clinical trial (NCT04980638) may be an excellent opportunity. Clinical trials provide access to cutting-edge treatments that aren't yet available to the general public, often at no cost to participants.

Our St Louis research site is actively enrolling participants for this clinical trial. You'll receive care from experienced x-linked hypohidrotic ectodermal dysplasia specialists who are at the forefront of medical research. All study-related care, including examinations, treatments, and monitoring, is provided at no cost to qualified participants.

Looking for more options? Browse all x-linked hypohidrotic ectodermal dysplasia clinical trials near you to find additional studies recruiting in your area.

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Secure · Expert Care · St Louis, MO