Lewisburg, PANCT01238250Now EnrollingIRB Ready

16P11.2 Deletion Syndrome Clinical Trial in Lewisburg, PA

Access cutting-edge 16p11.2 deletion syndrome treatment through this clinical trial at a research site in Lewisburg. Study-provided care at no cost to qualified participants.

Sponsored by Simons Searchlight

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Expert Care in Lewisburg

Access 16p11.2 deletion syndrome specialists at no cost

IRB Approved

This study follows strict safety protocols and ethical guidelines

No-Cost Care

All study-related 16p11.2 deletion syndrome treatment provided free

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Check if you qualify for this 16p11.2 deletion syndrome clinical trial in Lewisburg, PA

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Your information is protected and will only be shared with the research team.

Why Participate?

  • No-Cost Study Care

  • Local to Lewisburg

    Convenient for PA residents

  • Cutting-Edge Treatment

    Access to innovative therapies

  • Expert Medical Care

    Close monitoring by specialists

  • Possible Compensation*

    For time and travel

*Compensation varies by study. Confirm details with coordinator.

Simple Process

  1. 1Submit this form
  2. 2Phone screening
  3. 3Visit Lewisburg site if eligible
  4. 4Begin participation

About This 16P11.2 Deletion Syndrome Study in Lewisburg

Simons Searchlight is an observational, online, international research program for families with rare genetic variants that cause neurodevelopmental disorders and may be associated with autism. Simons Searchlight collects medical, behavioral, learning, and developmental information from people who have these rare genetic changes. The goal of this study is to improve the clinical care and treatment for these people. Simons Searchlight partners with families to collect data and distribute it to qualified researchers.

Sponsor: Simons Searchlight

Who Can Participate

Inclusion Criteria

Subjects of any age with a genetic condition on our eligible list along with their biological family members. Current list can be found at: https://www.simonssearchlight.org/research/what-we-study/
Must be fluent in English or a supported language. Current supported languages are Spanish, French, and Dutch, with more to come.
Able to register and participate through our online platform, which can be accessed through any device able to connect to the internet.
Able and willing to provide consent.

Exclusion Criteria

-Some genetic changes that we study have regions or variants that are not eligible for our research. This is determined during our laboratory review that is completed by trained and certified genetic counselors. These specific ineligible regions or variants can change frequently.

Not sure if you qualify? Submit your interest and a study coordinator will help determine your eligibility.

Frequently Asked Questions

Q:Is this study available in Lewisburg?

Yes, this clinical trial (NCT01238250) has an active research site in Lewisburg, PA that is currently enrolling participants.

Q:Is it safe to participate?

Clinical trials follow strict safety guidelines and ethical standards. This study has been reviewed and approved, and participants are closely monitored by medical professionals. You can withdraw at any time.

Q:Will I be compensated?

Many clinical trials offer compensation for your time and travel expenses. Specific compensation details will be discussed during the screening process. All study-related medical care is provided at no cost.

Q:Can I leave the trial if I change my mind?

Absolutely. Participation is completely voluntary. You have the right to withdraw from the study at any time, for any reason, without penalty.

Still have questions? Our study coordinators are here to help.

16P11.2 Deletion Syndrome Treatment Options in Lewisburg, PA

If you're searching for 16p11.2 deletion syndrome treatment options in Lewisburg, PA, this clinical trial (NCT01238250) may be an excellent opportunity. Clinical trials provide access to cutting-edge treatments that aren't yet available to the general public, often at no cost to participants.

Our Lewisburg research site is actively enrolling participants for this clinical trial. You'll receive care from experienced 16p11.2 deletion syndrome specialists who are at the forefront of medical research. All study-related care, including examinations, treatments, and monitoring, is provided at no cost to qualified participants.

Looking for more options? Browse all 16p11.2 deletion syndrome clinical trials near you to find additional studies recruiting in your area.

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