Columbia, MONCT07329257Now EnrollingIRB Ready

Baker Gordon Syndrome Clinical Trial in Columbia, MO

Access cutting-edge baker gordon syndrome treatment through this clinical trial at a research site in Columbia. Study-provided care at no cost to qualified participants.

Sponsored by University of Missouri-Columbia

Quick Self-Assessment

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Expert Care in Columbia

Access baker gordon syndrome specialists at no cost

IRB Approved

This study follows strict safety protocols and ethical guidelines

No-Cost Care

All study-related baker gordon syndrome treatment provided free

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Check if you qualify for this baker gordon syndrome clinical trial in Columbia, MO

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Your information is protected and will only be shared with the research team.

Why Participate?

  • No-Cost Study Care

  • Local to Columbia

    Convenient for MO residents

  • Cutting-Edge Treatment

    Access to innovative therapies

  • Expert Medical Care

    Close monitoring by specialists

  • Possible Compensation*

    For time and travel

*Compensation varies by study. Confirm details with coordinator.

Simple Process

  1. 1Submit this form
  2. 2Phone screening
  3. 3Visit Columbia site if eligible
  4. 4Begin participation

About This Baker Gordon Syndrome Study in Columbia

Rare genetic neurodevelopmental disorders, such as Syt-1 or Baker Gordon Syndrome (BAGOS) arise from mutations in genes essential for brain development and function, often disrupting neurotransmission and neuronal connectivity. These conditions present with a wide range of symptoms including developmental delays, seizures, motor and behavioral challenges, and vary widely in severity. These disorders are complex, and they remain poorly understood and lack effective treatments. Natural history and clinical genetic studies are crucial for mapping how these disorders progress, improving diagnostic accuracy, and guiding therapy development. A major focus is identifying reliable biomarkers (genetic, imaging, and physiological) to track disease severity and support clinical trials. This study will securely collect and analyze data to better understand disease impact, develop patient-derived model systems, and build resources to support future treatments.

Sponsor: University of Missouri-Columbia

Who Can Participate

Inclusion Criteria

Diagnosed or suspected neurogenetic disorder
Individuals 0-99

Exclusion Criteria

Individuals unwilling or unable to complete visits with the study team. For control parents/caregivers of those with a rare condition: Inclusion Criteria:
No history of a neurological disorder.
\>18 years.
Legal caregiver of the patient diagnosed with a rare neurodevelopmental disorder. Exclusion Criteria:
Individuals unwilling or unable to complete the visit with the study team.
Individuals who have a history of neurological disorders.
\< 18 years old For all individuals who participate in the skin biopsy:
Individuals with disease that is known to be associated with poor wound healing.
Individuals with a history of allergic reaction to lidocaine.
Medical History of cellulitis, diabetes mellitus, poor extremity circulation, deep vein thrombosis, or a history of non-traumatic amputation.
Currently taking anticoagulation or have taken with last 6 months

Not sure if you qualify? Submit your interest and a study coordinator will help determine your eligibility.

Frequently Asked Questions

Q:Is this study available in Columbia?

Yes, this clinical trial (NCT07329257) has an active research site in Columbia, MO that is currently enrolling participants.

Q:Is it safe to participate?

Clinical trials follow strict safety guidelines and ethical standards. This study has been reviewed and approved, and participants are closely monitored by medical professionals. You can withdraw at any time.

Q:Will I be compensated?

Many clinical trials offer compensation for your time and travel expenses. Specific compensation details will be discussed during the screening process. All study-related medical care is provided at no cost.

Q:Can I leave the trial if I change my mind?

Absolutely. Participation is completely voluntary. You have the right to withdraw from the study at any time, for any reason, without penalty.

Still have questions? Our study coordinators are here to help.

Baker Gordon Syndrome Treatment Options in Columbia, MO

If you're searching for baker gordon syndrome treatment options in Columbia, MO, this clinical trial (NCT07329257) may be an excellent opportunity. Clinical trials provide access to cutting-edge treatments that aren't yet available to the general public, often at no cost to participants.

Our Columbia research site is actively enrolling participants for this clinical trial. You'll receive care from experienced baker gordon syndrome specialists who are at the forefront of medical research. All study-related care, including examinations, treatments, and monitoring, is provided at no cost to qualified participants.

Looking for more options? Browse all baker gordon syndrome clinical trials near you to find additional studies recruiting in your area.

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Secure · Expert Care · Columbia, MO