Access cutting-edge inclusion body myopathy with early-onset paget disease and frontotemporal dementia treatment through this clinical trial at a research site in Irvine. Study-provided care at no cost to qualified participants.
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Access inclusion body myopathy with early-onset paget disease and frontotemporal dementia specialists at no cost
This study follows strict safety protocols and ethical guidelines
All study-related inclusion body myopathy with early-onset paget disease and frontotemporal dementia treatment provided free
Check if you qualify for this inclusion body myopathy with early-onset paget disease and frontotemporal dementia clinical trial in Irvine, CA
No-Cost Study Care
Local to Irvine
Convenient for CA residents
Cutting-Edge Treatment
Access to innovative therapies
Expert Medical Care
Close monitoring by specialists
Possible Compensation*
For time and travel
*Compensation varies by study. Confirm details with coordinator.
The investigators are researching families with inherited inclusion body myopathy (IBM) and/or Paget disease of bone (PDB) and/or dementia (FTD) which is also called IBMPFD. IBMPFD is caused by mutations in the VCP gene. Our main goal is to understand how changes in the VCP gene cause the muscle, bone and cognitive problems associated with the disease. The investigators are collecting biological specimen such as blood and urine samples, family and medical histories, questionnaire data of patients with a personal or family history of VCP associated disease. Participants do not need to have all symptoms listed above in order to qualify. A select group of participants may be invited to travel to University of California, Irvine for a two day program of local procedures such as an MRI and bone scan. Samples are coded to maintain confidentiality. Travel is not necessary except for families invited for additional testing.
Sponsor: University of California, Irvine
Yes, this clinical trial (NCT01353430) has an active research site in Irvine, CA that is currently enrolling participants.
Clinical trials follow strict safety guidelines and ethical standards. This study has been reviewed and approved, and participants are closely monitored by medical professionals. You can withdraw at any time.
Many clinical trials offer compensation for your time and travel expenses. Specific compensation details will be discussed during the screening process. All study-related medical care is provided at no cost.
Absolutely. Participation is completely voluntary. You have the right to withdraw from the study at any time, for any reason, without penalty.
If you're searching for inclusion body myopathy with early-onset paget disease and frontotemporal dementia treatment options in Irvine, CA, this clinical trial (NCT01353430) may be an excellent opportunity. Clinical trials provide access to cutting-edge treatments that aren't yet available to the general public, often at no cost to participants.
Our Irvine research site is actively enrolling participants for this clinical trial. You'll receive care from experienced inclusion body myopathy with early-onset paget disease and frontotemporal dementia specialists who are at the forefront of medical research. All study-related care, including examinations, treatments, and monitoring, is provided at no cost to qualified participants.
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