Recruiting Dravet Syndrome Studies in Durham
About Dravet Syndrome Clinical Trials in Durham
Dravet syndrome is a rare, severe form of epilepsy that begins in the first year of life with prolonged seizures often triggered by fever. It is usually caused by mutations in the SCN1A gene. Treatment includes specific antiseizure medications, avoiding certain drugs that can worsen seizures, and investigational gene therapies.
There are currently 2 dravet syndrome clinical trials recruiting participants in Durham, NC. These studies are seeking a combined 79 participants. Research is being sponsored by Encoded Therapeutics, Ionis Pharmaceuticals, Inc.. Clinical trial participation is free and participants receive study-related medical care at no cost.
Dravet Syndrome Clinical Trials in Durham — FAQ
Are there dravet syndrome clinical trials in Durham?
Yes, there are 2 dravet syndrome clinical trials currently recruiting in Durham, NC. Browse the studies on this page to find one that fits.
How do I join a clinical trial in Durham?
Browse the studies listed above, click one that interests you, and complete the free eligibility form. A study coordinator at the Durham research site will contact you about next steps.
Are clinical trials in Durham free?
Yes, clinical trial participation is always free. Study-related treatment, medical tests, and doctor visits are provided at no cost. Many Durham studies also compensate for your time and travel.
What dravet syndrome treatments are being tested?
The 2 active trials in Durham are testing new therapies including novel drugs, biologics, and treatment approaches for dravet syndrome.
Data updated October 16, 2026 from ClinicalTrials.gov