Minneapolis, MNNCT07615400Now EnrollingIRB Ready

Fucosidosis Clinical Trial in Minneapolis, MN

Access cutting-edge fucosidosis treatment through this clinical trial at a research site in Minneapolis. Study-provided care at no cost to qualified participants.

Sponsored by JCR Pharmaceuticals Co., Ltd.

Quick Self-Assessment

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Expert Care in Minneapolis

Access fucosidosis specialists at no cost

IRB Approved

This study follows strict safety protocols and ethical guidelines

No-Cost Care

All study-related fucosidosis treatment provided free

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Check if you qualify for this fucosidosis clinical trial in Minneapolis, MN

Secure & Confidential

Your information is protected and will only be shared with the research team.

Why Participate?

  • No-Cost Study Care

  • Local to Minneapolis

    Convenient for MN residents

  • Cutting-Edge Treatment

    Access to innovative therapies

  • Expert Medical Care

    Close monitoring by specialists

  • Possible Compensation*

    For time and travel

*Compensation varies by study. Confirm details with coordinator.

Simple Process

  1. 1Submit this form
  2. 2Phone screening
  3. 3Visit Minneapolis site if eligible
  4. 4Begin participation

About This Fucosidosis Study in Minneapolis

The purpose of this observational research study is to learn more about the natural history of fucosidosis, its symptoms, and how it develops over time. This study intends to collect information from participants diagnosed with fucosidosis; however, this study does not include any medication or treatment other than the usual medical care provided to study participants. The information collected in this study will be used to help understand the disease characteristics of fucosidosis; with this information potentially being able to help design future studies and treatments for this disease. There is currently no approved treatment for patients with fucosidosis. The study consists of 2 parts: a) Part A - retrospective data collection, and b) Part B - prospective data collection.

Sponsor: JCR Pharmaceuticals Co., Ltd.

Who Can Participate

Inclusion Criteria

(Part A): \- Confirmed diagnosis of fucosidosis

Exclusion Criteria

Patient/parent/caregiver not willing to consent to participate
Patient deceased with no availability of appropriate historical consent, and patient's family/caregivers are either unable to be contacted, or refuse consent to data sharing Inclusion Criteria (Part B):
Patient is alive
Confirmed diagnosis of fucosidosis Exclusion Criteria (Part B):
Patient/parent/caregiver not willing to consent to participate
Current participation in an interventional or therapeutic study
Patients who, in the opinion of the site investigator, would be unable or unsuitable to participate in the demands of the study

Not sure if you qualify? Submit your interest and a study coordinator will help determine your eligibility.

Frequently Asked Questions

Q:Is this study available in Minneapolis?

Yes, this clinical trial (NCT07615400) has an active research site in Minneapolis, MN that is currently enrolling participants.

Q:Is it safe to participate?

Clinical trials follow strict safety guidelines and ethical standards. This study has been reviewed and approved, and participants are closely monitored by medical professionals. You can withdraw at any time.

Q:Will I be compensated?

Many clinical trials offer compensation for your time and travel expenses. Specific compensation details will be discussed during the screening process. All study-related medical care is provided at no cost.

Q:Can I leave the trial if I change my mind?

Absolutely. Participation is completely voluntary. You have the right to withdraw from the study at any time, for any reason, without penalty.

Still have questions? Our study coordinators are here to help.

Fucosidosis Treatment Options in Minneapolis, MN

If you're searching for fucosidosis treatment options in Minneapolis, MN, this clinical trial (NCT07615400) may be an excellent opportunity. Clinical trials provide access to cutting-edge treatments that aren't yet available to the general public, often at no cost to participants.

Our Minneapolis research site is actively enrolling participants for this clinical trial. You'll receive care from experienced fucosidosis specialists who are at the forefront of medical research. All study-related care, including examinations, treatments, and monitoring, is provided at no cost to qualified participants.

Looking for more options? Browse all fucosidosis clinical trials near you to find additional studies recruiting in your area.

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Secure · Expert Care · Minneapolis, MN