Rochester, NYNCT06721299Now EnrollingIRB Ready

Muscular Dystrophy, Facioscapulohumeral Clinical Trial in Rochester, NY

Access cutting-edge muscular dystrophy, facioscapulohumeral treatment through this clinical trial at a research site in Rochester. Study-provided care at no cost to qualified participants.

Sponsored by Jeffrey Statland

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Expert Care in Rochester

Access muscular dystrophy, facioscapulohumeral specialists at no cost

IRB Approved

This study follows strict safety protocols and ethical guidelines

No-Cost Care

All study-related muscular dystrophy, facioscapulohumeral treatment provided free

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Check if you qualify for this muscular dystrophy, facioscapulohumeral clinical trial in Rochester, NY

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Why Participate?

  • No-Cost Study Care

  • Local to Rochester

    Convenient for NY residents

  • Cutting-Edge Treatment

    Access to innovative therapies

  • Expert Medical Care

    Close monitoring by specialists

  • Possible Compensation*

    For time and travel

*Compensation varies by study. Confirm details with coordinator.

Simple Process

  1. 1Submit this form
  2. 2Phone screening
  3. 3Visit Rochester site if eligible
  4. 4Begin participation

About This Muscular Dystrophy, Facioscapulohumeral Study in Rochester

The purpose of this study is to determine if Clenbuterol is a therapeutic option for FSHD by determining the safety and tolerability of the medication at three different dose levels.

Sponsor: Jeffrey Statland

Who Can Participate

Inclusion Criteria

Genetically confirmed diagnosis of FSHD type 1 or 2, or have a clinical diagnosis of FSHD type 1 with a first degree relative with confirmed mutation
between 18 and 75 years of age
with a clinical severity score between 0 and 10
Able to walk 30ft without support of another person
Showing anti-gravity strength on at least one of the tibialis anterior muscles or having an MRI eligible muscle in the leg for needle biopsy
willing and able to provide informed consent
agree to follow the contraceptive requirement for duration of the study

Exclusion Criteria

Pregnant or planning to become pregnant during the conduct of the study
have a poorly controlled medical condition
Were involved in a study of an experimental agent within 3 months of enrollment
Are taking beta-blockers or anabolic agent or potassium wasting diuretics
Are taking or are planning to take a GLP-1 Agonist during trial
have any condition or contraindication which would interfere with testing or preclude use of beta-agonist
Are taking blood thinners or medications which make a needle muscle biopsy contra-indicated
Has contraindication to lactose such as galactosmia, lactase deficiency and glucose-galactose malabsorption. For those who are lactose intolerant, the PI will determine acceptability based on tolerance reaction to lactose
Are taking any medications or therapies with a contraindication to Clenbuterol

Not sure if you qualify? Submit your interest and a study coordinator will help determine your eligibility.

Frequently Asked Questions

Q:Is this study available in Rochester?

Yes, this clinical trial (NCT06721299) has an active research site in Rochester, NY that is currently enrolling participants.

Q:Is it safe to participate?

Clinical trials follow strict safety guidelines and ethical standards. This study has been reviewed and approved, and participants are closely monitored by medical professionals. You can withdraw at any time.

Q:Will I be compensated?

Many clinical trials offer compensation for your time and travel expenses. Specific compensation details will be discussed during the screening process. All study-related medical care is provided at no cost.

Q:Can I leave the trial if I change my mind?

Absolutely. Participation is completely voluntary. You have the right to withdraw from the study at any time, for any reason, without penalty.

Still have questions? Our study coordinators are here to help.

Muscular Dystrophy, Facioscapulohumeral Treatment Options in Rochester, NY

If you're searching for muscular dystrophy, facioscapulohumeral treatment options in Rochester, NY, this clinical trial (NCT06721299) may be an excellent opportunity. Clinical trials provide access to cutting-edge treatments that aren't yet available to the general public, often at no cost to participants.

Our Rochester research site is actively enrolling participants for this clinical trial. You'll receive care from experienced muscular dystrophy, facioscapulohumeral specialists who are at the forefront of medical research. All study-related care, including examinations, treatments, and monitoring, is provided at no cost to qualified participants.

Looking for more options? Browse all muscular dystrophy, facioscapulohumeral clinical trials near you to find additional studies recruiting in your area.

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