Salt Lake City, UTNCT06847282Now EnrollingIRB Ready

Muscular Dystrophy, Facioscapulohumeral Clinical Trial in Salt Lake City, UT

Access cutting-edge muscular dystrophy, facioscapulohumeral treatment through this clinical trial at a research site in Salt Lake City. Study-provided care at no cost to qualified participants.

Sponsored by University of Kansas Medical Center

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Expert Care in Salt Lake City

Access muscular dystrophy, facioscapulohumeral specialists at no cost

IRB Approved

This study follows strict safety protocols and ethical guidelines

No-Cost Care

All study-related muscular dystrophy, facioscapulohumeral treatment provided free

Apply for This Salt Lake City Location

Check if you qualify for this muscular dystrophy, facioscapulohumeral clinical trial in Salt Lake City, UT

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Your information is protected and will only be shared with the research team.

Why Participate?

  • No-Cost Study Care

  • Local to Salt Lake City

    Convenient for UT residents

  • Cutting-Edge Treatment

    Access to innovative therapies

  • Expert Medical Care

    Close monitoring by specialists

  • Possible Compensation*

    For time and travel

*Compensation varies by study. Confirm details with coordinator.

Simple Process

  1. 1Submit this form
  2. 2Phone screening
  3. 3Visit Salt Lake City site if eligible
  4. 4Begin participation

About This Muscular Dystrophy, Facioscapulohumeral Study in Salt Lake City

The primary goal of this study is to validate motor and functional outcomes and refine clinical trial strategies for pediatric-onset FSHD

Sponsor: University of Kansas Medical Center

Who Can Participate

Inclusion Criteria

Age 5-17 years.
Genetically confirmed FSHD (types 1 or 2).
Symptomatic weakness (facial, shoulder, core, or limb weakness)
Able to complete a 10-meter walk without the support of another person in less than 12 seconds (canes, walking sticks, and braces allowed; no walker). In order to include early onset participants up to 8 individuals will be entered with baseline 10MWR \> 12 seconds or who are no longer ambulatory (≤10%)

Exclusion Criteria

Unwilling or unable to provide informed consent or assent. Any other medical condition which in the opinion of the investigator would interfere with study participation.
Malignancy with ongoing treatment with chemotherapeutic agents or anabolic agents
Use of immunosuppressants including prednisone or performance enhancing drugs including testosterone within 6 months
Recent or ongoing infection
Presence of contraindication to performance of MRI: pacemaker, metallic foreign body in eye, brain aneurysm clip (unless documented as MRI compatible)
In the opinion of the investigator unable to follow directions for standardized testing
Note: Not being able to complete MRI will not result in a screen failure. If subject is not able to complete the procedure due to fear or anxiety, they will have the opportunity to try again at later visits. However, Subject must be willing to attempt to perform the MRI to meet inclusion/exclusion criteria

Not sure if you qualify? Submit your interest and a study coordinator will help determine your eligibility.

Frequently Asked Questions

Q:Is this study available in Salt Lake City?

Yes, this clinical trial (NCT06847282) has an active research site in Salt Lake City, UT that is currently enrolling participants.

Q:Is it safe to participate?

Clinical trials follow strict safety guidelines and ethical standards. This study has been reviewed and approved, and participants are closely monitored by medical professionals. You can withdraw at any time.

Q:Will I be compensated?

Many clinical trials offer compensation for your time and travel expenses. Specific compensation details will be discussed during the screening process. All study-related medical care is provided at no cost.

Q:Can I leave the trial if I change my mind?

Absolutely. Participation is completely voluntary. You have the right to withdraw from the study at any time, for any reason, without penalty.

Still have questions? Our study coordinators are here to help.

Muscular Dystrophy, Facioscapulohumeral Treatment Options in Salt Lake City, UT

If you're searching for muscular dystrophy, facioscapulohumeral treatment options in Salt Lake City, UT, this clinical trial (NCT06847282) may be an excellent opportunity. Clinical trials provide access to cutting-edge treatments that aren't yet available to the general public, often at no cost to participants.

Our Salt Lake City research site is actively enrolling participants for this clinical trial. You'll receive care from experienced muscular dystrophy, facioscapulohumeral specialists who are at the forefront of medical research. All study-related care, including examinations, treatments, and monitoring, is provided at no cost to qualified participants.

Looking for more options? Browse all muscular dystrophy, facioscapulohumeral clinical trials near you to find additional studies recruiting in your area.

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