Madera, CANCT02285582Now EnrollingIRB Ready

Rare Histiocytic Disorders (RHDs) Clinical Trial in Madera, CA

Access cutting-edge rare histiocytic disorders (rhds) treatment through this clinical trial at a research site in Madera. Study-provided care at no cost to qualified participants.

Sponsored by The Hospital for Sick Children

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Expert Care in Madera

Access rare histiocytic disorders (rhds) specialists at no cost

IRB Approved

This study follows strict safety protocols and ethical guidelines

No-Cost Care

All study-related rare histiocytic disorders (rhds) treatment provided free

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Check if you qualify for this rare histiocytic disorders (rhds) clinical trial in Madera, CA

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Why Participate?

  • No-Cost Study Care

  • Local to Madera

    Convenient for CA residents

  • Cutting-Edge Treatment

    Access to innovative therapies

  • Expert Medical Care

    Close monitoring by specialists

  • Possible Compensation*

    For time and travel

*Compensation varies by study. Confirm details with coordinator.

Simple Process

  1. 1Submit this form
  2. 2Phone screening
  3. 3Visit Madera site if eligible
  4. 4Begin participation

About This Rare Histiocytic Disorders (RHDs) Study in Madera

The rare histiocytic disorders (RHDs) are characterized by the infiltration of one or more organs by non-LCH histiocytes. They can range from localized disease that resolves spontaneously, to progressive disseminated forms that can be sometimes life-threatening. Since they are extremely rare, there is limited understanding of their causes and best treatment options. Physicians, patients and parents of children with RHDs frequently consult members of the Histiocyte Society regarding the best management of these disorders. Very often, no specific recommendation can be made due to the lack of prospective outcome data, or even large retrospective case series. The creation of an international rare histiocytic disorders registry (IRHDR) could facilitate a uniform diagnosis of the RHDs, as well as the collection and analysis of the clinical, epidemiological, treatment and survival data of patients with RHD. The registry may also lead to future therapeutic recommendations, provide a framework for future clinical trials and create excellent research opportunities.

Sponsor: The Hospital for Sick Children

Who Can Participate

Inclusion Criteria

Any age at diagnosis.
Diagnosis of a rare histiocytic disorder, established before or after the opening of the registry.
Cases diagnosed from January - 01- 1995 until the present time and prospectively.
Signed informed consent by a patient, or parent/legal guardian.
Cognitively impaired patients can be included after consent by legal guardian/parent.
Deceased patients can be included if they are contacted at least 6 months after the death of their child and not on their child's birthday or anniversary of death.

Exclusion Criteria

Informed consent has not been signed.
Diagnosis other than RHD.
Cases diagnosed before the year 1995.

Not sure if you qualify? Submit your interest and a study coordinator will help determine your eligibility.

Frequently Asked Questions

Q:Is this study available in Madera?

Yes, this clinical trial (NCT02285582) has an active research site in Madera, CA that is currently enrolling participants.

Q:Is it safe to participate?

Clinical trials follow strict safety guidelines and ethical standards. This study has been reviewed and approved, and participants are closely monitored by medical professionals. You can withdraw at any time.

Q:Will I be compensated?

Many clinical trials offer compensation for your time and travel expenses. Specific compensation details will be discussed during the screening process. All study-related medical care is provided at no cost.

Q:Can I leave the trial if I change my mind?

Absolutely. Participation is completely voluntary. You have the right to withdraw from the study at any time, for any reason, without penalty.

Still have questions? Our study coordinators are here to help.

Rare Histiocytic Disorders (RHDs) Treatment Options in Madera, CA

If you're searching for rare histiocytic disorders (rhds) treatment options in Madera, CA, this clinical trial (NCT02285582) may be an excellent opportunity. Clinical trials provide access to cutting-edge treatments that aren't yet available to the general public, often at no cost to participants.

Our Madera research site is actively enrolling participants for this clinical trial. You'll receive care from experienced rare histiocytic disorders (rhds) specialists who are at the forefront of medical research. All study-related care, including examinations, treatments, and monitoring, is provided at no cost to qualified participants.

Looking for more options? Browse all rare histiocytic disorders (rhds) clinical trials near you to find additional studies recruiting in your area.

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