Washington Dc, DCNCT06941389Now EnrollingIRB Ready

Sickle Cell Disease (SCD) Clinical Trial in Washington Dc, DC

Access cutting-edge sickle cell disease (scd) treatment through this clinical trial at a research site in Washington Dc. Study-provided care at no cost to qualified participants.

Sponsored by University of Rochester

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Expert Care in Washington Dc

Access sickle cell disease (scd) specialists at no cost

IRB Approved

This study follows strict safety protocols and ethical guidelines

No-Cost Care

All study-related sickle cell disease (scd) treatment provided free

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Check if you qualify for this sickle cell disease (scd) clinical trial in Washington Dc, DC

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Why Participate?

  • No-Cost Study Care

  • Local to Washington Dc

    Convenient for DC residents

  • Cutting-Edge Treatment

    Access to innovative therapies

  • Expert Medical Care

    Close monitoring by specialists

  • Possible Compensation*

    For time and travel

*Compensation varies by study. Confirm details with coordinator.

Simple Process

  1. 1Submit this form
  2. 2Phone screening
  3. 3Visit Washington Dc site if eligible
  4. 4Begin participation

About This Sickle Cell Disease (SCD) Study in Washington Dc

The WeDecide study is a large observational study comparing the long-term effects of matched related donor hematopoietic stem cell transplantation (MRD HCT) and non-transplant disease-modifying therapies (NT-DMT) for pediatric patients with sickle cell disease (SCD). The study aims to assess health-related quality of life (HRQoL), cognitive function, risks, and benefits of both treatments, including survival rates, chronic complications, and organ damage prevention. With 160 children in the MRD HCT group and 320 in the NT-DMT group, aged 3-20.9 years, the study will follow participants for three years, examining factors like disease severity, treatment history, and social determinants of health. By providing a comprehensive comparison, the study seeks to inform clinical decisions and improve understanding of SCD treatment outcomes, ultimately supporting families and healthcare providers in choosing the best treatment options.

Sponsor: University of Rochester

Who Can Participate

Inclusion Criteria

Pediatric patients aged between 3 and 20.9 years.
Children diagnosed with sickle cell Anemia (HB SS or HBSB0 Thalassemia)
For the MRD HCT group, children who are candidates for matched related donor hematopoietic stem cell transplantation (MRD HCT).
For the NT-DMT group, children who are receiving non-transplant disease-modifying therapies (NT-DMT) for SCD.
Participants (or their guardians) must provide informed consent to be part of the study.
Participants must be willing to undergo the necessary assessments and follow-up visits over the 3-year study period.

Exclusion Criteria

Children younger than 3 years or older than 20.9 years.
Children who do not have sickle cell anemia or related conditions.
For the MRD HCT group, children who are not eligible for the transplant or do not have a matched related donor.
Children who are currently enrolled in other clinical trials that might interfere with the WeDecide study.
Children who are unable to adhere to the study protocol or follow-up requirements.

Not sure if you qualify? Submit your interest and a study coordinator will help determine your eligibility.

Frequently Asked Questions

Q:Is this study available in Washington Dc?

Yes, this clinical trial (NCT06941389) has an active research site in Washington Dc, DC that is currently enrolling participants.

Q:Is it safe to participate?

Clinical trials follow strict safety guidelines and ethical standards. This study has been reviewed and approved, and participants are closely monitored by medical professionals. You can withdraw at any time.

Q:Will I be compensated?

Many clinical trials offer compensation for your time and travel expenses. Specific compensation details will be discussed during the screening process. All study-related medical care is provided at no cost.

Q:Can I leave the trial if I change my mind?

Absolutely. Participation is completely voluntary. You have the right to withdraw from the study at any time, for any reason, without penalty.

Still have questions? Our study coordinators are here to help.

Sickle Cell Disease (SCD) Treatment Options in Washington Dc, DC

If you're searching for sickle cell disease (scd) treatment options in Washington Dc, DC, this clinical trial (NCT06941389) may be an excellent opportunity. Clinical trials provide access to cutting-edge treatments that aren't yet available to the general public, often at no cost to participants.

Our Washington Dc research site is actively enrolling participants for this clinical trial. You'll receive care from experienced sickle cell disease (scd) specialists who are at the forefront of medical research. All study-related care, including examinations, treatments, and monitoring, is provided at no cost to qualified participants.

Looking for more options? Browse all sickle cell disease (scd) clinical trials near you to find additional studies recruiting in your area.

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