Durham, NCNCT04629014Now EnrollingIRB Ready

Pediatric Intestinal Failure Clinical Trial in Durham, NC

Access cutting-edge pediatric intestinal failure treatment through this clinical trial at a research site in Durham. Study-provided care at no cost to qualified participants.

Sponsored by Boston Children's Hospital

Quick Self-Assessment

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Expert Care in Durham

Access pediatric intestinal failure specialists at no cost

IRB Approved

This study follows strict safety protocols and ethical guidelines

No-Cost Care

All study-related pediatric intestinal failure treatment provided free

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Check if you qualify for this pediatric intestinal failure clinical trial in Durham, NC

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Your information is protected and will only be shared with the research team.

Why Participate?

  • No-Cost Study Care

  • Local to Durham

    Convenient for NC residents

  • Cutting-Edge Treatment

    Access to innovative therapies

  • Expert Medical Care

    Close monitoring by specialists

  • Possible Compensation*

    For time and travel

*Compensation varies by study. Confirm details with coordinator.

Simple Process

  1. 1Submit this form
  2. 2Phone screening
  3. 3Visit Durham site if eligible
  4. 4Begin participation

About This Pediatric Intestinal Failure Study in Durham

This study proposes to quantify and describe the quality of life of children with intestinal failure, and to identify the medical and socio-economic factors that impact this quality of life, using data from multiple multidisciplinary intestinal failure centers across the United States and Canada specializing in the care of these participants.

Sponsor: Boston Children's Hospital

Who Can Participate

Inclusion Criteria

Participants will be followed in a participating institution's intestinal rehabilitation program
Participants will have a diagnosis of intestinal failure due to functional or structural intestinal dysfunction with current or prior history of specialized nutritional support (parenteral nutrition requirement for 60 out of 74 consecutive days)
Participants will be age 6 months to 25 years old.
Parents/caregivers must be able to complete questionnaire without assistance.
English or Spanish speaking

Exclusion Criteria

Participants aged less than 6 months or greater than 25 years will not be included in this study
Participants will not be enrolled less than 3 months from index admission or initial outpatient evaluation
Participants will not be enrolled less than 1 month from inpatient admission (any admission greater than 24 hours in duration)
Participants will not be enrolled less than 1 month from any operative intervention requiring general anesthesia.
Primary language other than English or Spanish.
Participants who have a currently functional small bowel, liver/small bowel or multivisceral transplant
While other major co-morbidities may be excluded at a later time during data analysis, or may be analyzed as a specific sub-group, they will not be excluded outright. For example, participants with global developmental delay may have parent surveys only, and therefore would need to be excluded from paired analysis of proxy vs. participant perception of HRQOL

Not sure if you qualify? Submit your interest and a study coordinator will help determine your eligibility.

Frequently Asked Questions

Q:Is this study available in Durham?

Yes, this clinical trial (NCT04629014) has an active research site in Durham, NC that is currently enrolling participants.

Q:Is it safe to participate?

Clinical trials follow strict safety guidelines and ethical standards. This study has been reviewed and approved, and participants are closely monitored by medical professionals. You can withdraw at any time.

Q:Will I be compensated?

Many clinical trials offer compensation for your time and travel expenses. Specific compensation details will be discussed during the screening process. All study-related medical care is provided at no cost.

Q:Can I leave the trial if I change my mind?

Absolutely. Participation is completely voluntary. You have the right to withdraw from the study at any time, for any reason, without penalty.

Still have questions? Our study coordinators are here to help.

Pediatric Intestinal Failure Treatment Options in Durham, NC

If you're searching for pediatric intestinal failure treatment options in Durham, NC, this clinical trial (NCT04629014) may be an excellent opportunity. Clinical trials provide access to cutting-edge treatments that aren't yet available to the general public, often at no cost to participants.

Our Durham research site is actively enrolling participants for this clinical trial. You'll receive care from experienced pediatric intestinal failure specialists who are at the forefront of medical research. All study-related care, including examinations, treatments, and monitoring, is provided at no cost to qualified participants.

Looking for more options? Browse all pediatric intestinal failure clinical trials near you to find additional studies recruiting in your area.

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Secure · Expert Care · Durham, NC