NCT07855484 · Memorial Sloan Kettering Cancer Center
Improving Goals of Care Conversations Between Doctors and Young Adults With Cancer
What this study is about
The purpose of this study is to adapt a goals of care communication tool, called Jumpstart, for adolescent and young adult cancer patients (also called AYAC). Goals of care conversations are discussions between patients and their doctors about the patient's wishes, values, and priorities for their care.
View original scientific description
The purpose of this study is to adapt a goals of care communication tool, called Jumpstart, for adolescent and young adult cancer patients (also called AYAC). Goals of care conversations are discussions between patients and their doctors about the patient's wishes, values, and priorities for their care. The Jumpstart tool was created for adult patients to help start these conversations during doctor's appointments. This study will adapt the tool so that it works better for adolescent and young adult patients with cancer. We will also look at whether the tool is practical and useful for AYAC and for medical doctors who see or treat AYAC patients.
Interventions
OTHER
Jumpstart GOCC intervention
1. Patient-facing survey; 2. GOCC tips sheet for the patient; 3. GOCC guide for providers
Primary outcome measures
Number of participants who participate
Time frame: 2 years
All participants with data will be evaluable for analysis of feasibility (i.e., measures of enrollment and data collection).
Who can participate
This study lists these criteria on ClinicalTrials.gov. A study coordinator reviews eligibility during screening — this page does not determine whether you qualify.
Inclusion criteria
- Patient (All Aims)
- Between ages 18-39;
- Has a diagnosis of Stage III or IV cancer as per clinician note in the EMR;
- Attended at least one, but no more than three, appointments with their oncologist as per EMR or self-report;
- English as their primary language in the EMR;
- Can independently consent to study procedures without a surrogate or legally authorized representative;
- MSK treating oncologist answers "no" to the question, "Would you be surprised if this patient died within the next year?"
- AIMS 2 \& 3 ONLY: Did not participate in previous aims Clinician (All Aims)
- are 18 or older;
- are an MSK oncologist who sees AYAC patients
- AIMS 2 \& 3 ONLY: Did not participate in previous aims
Exclusion criteria
- Clinician (Aims 1 \& 2): none
- Patient (Aim 3 ONLY)
- if a GOCC has previously been documented in the EMR
Where
- Basking Ridge, New Jersey
- Middletown, New Jersey
- Montvale, New Jersey
- Commack, New York
- Harrison, New York
- New York, New York
- Uniondale, New York
Related conditions & keywords
Frequently asked questions
What is a clinical trial?
A clinical trial is a research study that tests new medical treatments, drugs, devices, or procedures to determine their safety and effectiveness. Trials are carefully designed and monitored to protect participants while advancing medical knowledge.
Is it safe to participate?
Clinical trials follow strict safety guidelines and ethical standards. Trials must be reviewed and approved, and participants are closely monitored by medical professionals throughout the study. You can withdraw at any time if you choose.
Will I be compensated?
Many clinical trials offer compensation for your time, travel expenses, and inconvenience. The specific compensation varies by study and will be discussed during the screening process. All study-related medical care is typically provided at no cost to participants.
Will I receive a placebo instead of treatment?
When effective treatment exists, participants typically receive either the standard treatment plus the study intervention, or the standard treatment plus placebo. You would not be denied effective care. Placebos are primarily used when no proven treatment is available, or in addition to standard care. Your trial consent form will clearly explain what treatments you may receive.
Can I leave a trial if I change my mind?
Absolutely. Participation in clinical trials is completely voluntary. You have the right to withdraw from the study at any time, for any reason, without penalty or loss of benefits to which you are otherwise entitled.
How long does a clinical trial last?
Trial duration varies widely depending on the study design and purpose. Some trials last just a few weeks, while others may continue for months or years. The study coordinator will provide specific timeline information during your screening call.
Data: ClinicalTrials.gov · synced Oct 2, 2026 · Source of record for eligibility and locations